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late talker/ apraxia global partner support groups

 February 2002 Exceptional Parent

CoverMagazine article on apraxia with information about children from a parents perspective and information about CHERAB!

40 Early Warning
“Just a late talker” was a phrase two mothers
kept hearing when they questioned their
children’s lack of verbal ability. Pressing for answers, they discovered the mysterious
disorder called verbal apraxia and found out
about the importance of early intervention
and support.  Dealing with a Parent’s Worst Nightmare
by Jeanne Buesser, Outreach Coordinator for CHERAB and President Apraxia Network of Bergan County  Evan’s Story by Stacey Abenstein former secretary of Children's Apraxia Network

TV show on Late Talker vs Apraxia

Not Just A Late Talker TV Show

We crashed the server...again!!

"Not Just A Late Talker" A half and hour talk show about verbal apraxia featuring parents and professionals from CHERAB aired twice now on CN8 on a show called "Real Life"  

We know that only the people that receive the CN8 TV station were able to watch the Not Just A Late Talker show on TV even though CN8 has now aired it twice.  I spoke to the producer about what happened and as you all probably know, in the media world crashing the server for a second time is not a bad thing. It sends a powerful message to them and the world that there is extremely strong interest in this area, and that there are more than us than they thought.
 
Before CHERAB, most people looked at apraxia as an unknown, and possibly rare speech disorder. That may be because most just stuck to the label "apraxia" which is limiting since that label is controversial, yet the reality is that children with the same "late talker" symptoms are on the rise. So no matter what you call, or your doctor calls, or your school calls, or your speech therapist calls, or your mother in law calls, this speech disorder, or speech impairment, there are more "late talkers" today who are not "just starting to talk" than years ago. And there is something that needs to be done about it to help all of our children, and all of us.
 
So again, we as parents and professionals together as a group sent a second (or third if you count Inside Edition TV who STILL has our link up at http://www.insideedition.com/links.htm out
of all the many shows they air) powerful message on behalf of our children who in many cases can't yet say it themselves. Together we screamed it for them.
 

Also stay tuned about our new T shirts -above is the rough of the logo!

The Late Talker/apraxia half and hour talk show last aired on CN8 http://www.cn8.tv on a show called "Real Life" at 6:00 PM 1/14/2002.  This show, titled "Not just a late talker" (You know how everyone says "Oh he's just a late talker!") is about apraxia from the view points of parents (with their apraxic children) and professionals.  One of the new advisors for CHERAB is on the show - Dr. Judy Flax , who is a PhD in charge of research for the Center for Molecular and Behavioral Neuroscience at Rutgers University - as well as (our resident TV star) Cheryl Bennett Johnson SLS MA /Educational Consultant who is featured in two commercials as the NJ Teacher Representative-and one of the commercials was aired twice during the show!!  Due to another very exciting project we are working on Marilyn Agin MD was not able to make it to the taping for this show, however there will be others!  (We'll keep you posted here!)

Since they didn't get time to really talk much on TV -listen to some of the children from the show now (click on their picture)

If you just watched the show "Not Just a Late Talker" and have lots of questions...please join our online group which is overseen by medical, speech and educational professionals for answers about what to do next!   (If you missed the show - click here for details if you still want to see it.)  And if you want to see pictures of Liz and Halley's trip to NYC-and MARS - after the taping click here.  

bulletTo navigate through this website -please click on duckie "index"  
bulletto see lots of other speech sites that may help check out the

 

"Imagine being stuck in a world where you can understand perfectly well, but you don't have the voice to communicate."  Deborah Norville : Inside Edition's segment on our organization, and Verbal Apraxia.   Inside Edition's segment on our nonprofit and verbal apraxia was scheduled to air Nationwide on August 6th, 2001.  Find Out More!

 

Hear Apraxic Children at The Talking Page.

Read an "apraxia" online diary at Kids Talk Back

Look Who's Talking Now: Speech Disorders and the Therapeutic Role of Essential Fatty Acids like Omega 3 and Omega 6 and other press about Children's Apraxia Network and CHERAB

Verbal Apraxia or Late Talker?  Speech Delay or Speech Disorder?  Apraxia or Dyspraxia?  Speech Language Impairment or Language Learning Impairment?  And what about, Autism / Mental Retardation or Apraxia? 

How could such a widespread condition be so misdiagnosed and misunderstood?  

Late Talker vs. Apraxia?  Ask our Doctors.  Dr. Marilyn Agin is one of the key medical professionals behind the CHERAB Foundation.

See what's going on for our meeting this month.

late talker/ apraxia global partner support groups

bulletClick Here for the "Duckie"  Index

The nonprofit CHERAB's websites are for anyone who cares for a child that has delayed speech, a speech disorder, or is a late talker, etc., as well as for those who care for a child that has a received a diagnosis of "apraxia."  Right now you may be thinking, "Apraxia, what's that?" 

Apraxia is a neurological disorder which can affect the body, or speech, or both.  There are other apraxia and language sites and listservs on the internet that have been around for many years that answer some of this question mostly from the opinions of parents or Speech and Language Pathologists.  

Then why doesn't everyone know what apraxia is?

We believe the views of the medical professionals are critical not only for helping our children individually, but to raising awareness about, evaluating and treating neurological disorders of speech globally.  This is why the nonprofit CHERAB Foundation, which is overseen by developmental pediatricians,  is affiliating with hospitals and is working together with various types of medical, speech, and educational professionals.

Not every mosquito bite leads to West Nile Virus, not every tick bite leads to Lyme Disease, and not every "late-talker" leads to apraxia.  However, you and your child's pediatrician should be aware of the warning signs of apraxia, for the same reasons you are aware of the warning signs of Lyme Disease and West Nile Virus, so there could be early detection, and early treatment!

I wish that when I searched under the words "late talker," or "delayed speech" a site like this came up

As the President of the non profit CHERAB, it is also apparent that far to many people, parents and professionals included, do not know the importance of early intervention for children that are "late talkers."  Many of these same parents and professionals still do not know what apraxia is, so therefore do not know some of the simple warning signs.   The President of the Self Help Clearing House, has compared our nonprofit group to a small support group for Lyme Disease before anyone knew about it, before he let the TV show 20/20 know about them.  He believes people will respond the same way they did to Lyme Disease once they do know about apraxia.   

Lisa Geng, President and Founder with Dr. Agin of CHERAB Foundation  Below is a picture of me, my husband, and our two late talkers, Dakota and Tanner: the inspiration behind CHERAB

Family Picture from top left, Glenn, Dakota, (our first "late talker,") Lisa, and Tanner, (our second "late talker" who we used to call the "Serious Babe.")  

What  nobody knew then, including Tanner's first pediatricians, or his first Speech and Language Pathologist, was that his lack of facial expressions  was one of the warning signs of oral apraxia, a condition that CAN be diagnosed earlier than verbal apraxia.  

 

bullet

Urgent Request:
bulletHow you can help for the sake of apraxic children everywhere. 

 

Share the holiday spirit.  Get an inside  Peek At this Year's Children's Holiday Gala Event!

Thanks to Seton Hall University Law School!

Here is  information about the March 23, 2001 Gala Event at Seton Hall  That Benefited our nonprofit.

We are proud to announce that  we were voted as the primary recipient of Seton Hall University's Law School's  Competitive Grant.  Here is the information.   

Because of this Grant, as well as the continued wonderful support of our current sponsors and others, the CHERAB Foundation will soon be able to:

bulletProvide subsidized screenings for speech and language, as well as subsidized group therapy for the children.   
bulletBegin various research projects with participating hospitals, physicians and speech and language pathologists.  
bulletCreate much needed new schools/ and or educational programs for apraxic or other severe language disabled children.  
bulletRaise awareness to the medical community, which will raise awareness to the general public, about apraxia, and the importance of Early Intervention for any child who is non verbal at 2.  Our goal is to have professionals and parents learn the benefits of Early Intervention, even for children who it is believed "only have a delay in speech." 

Join the CHERAB Foundation's information list
Late Talker vs. Apraxia? 
NEW: Find out live at our meetings, or on line, coming soon virtual meetings with the medical and speech experts at speechpathologist.org, also:

CHERAB Apraxia Survey For Magazine Article
A writer for a major magazine is on the CHERAB information list, and has sent out a list of questions for both parents, as well as professionals.  Our list, which is overseen by Developmental Pediatricians Dr. Agin, Dr. Laveman, and other medical, speech and educational professionals who are there to answer questions, has the option of viewing these posts online once you are a member.
CHERAB List
  

 
bulletClick Here for the "Duckie"  Index
bulletClick Here for the
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Disclaimer: This information and resources on the "Late Talker vs. Apraxia" Site is for educational purposes only.  CHERAB Foundation is the largest personal support for apraxia in the world, and welcomes other organizations that provide help for those with speech delays or disorders.  As a mom to a child with apraxia of speech, and  the President and founder with Dr. Agin of the nonprofit C.HERAB Foundation, I am not engaged in therapeutic advice or professional services, but work together with various speech, educational and medical professionals. The information provided should not be used in place of professional advice or care. If you have any speech related questions or concerns you should contact your child's speech language pathologist or have your child evaluated by one, and also take your child to a developmental pediatrician or neurologist that is knowledgeable about apraxia and other disorders.  Any resource or link does not imply endorsement.   Special Thanks to our "cherub"  Tanner, the inspiration for CHERAB (And Three Websites For Apraxia!)  

 
  
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Ask The Doctors

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Apraxia what's that?

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"Never doubt that a small group of thoughtful, committed citizens can change the world; indeed, it's the only thing that ever has." -- Margaret Mead, anthropologist