What's going on? Please
check our new special
events page!
 late
talker/ apraxia global partner support groups
February 2002 Exceptional
Parent
 Magazine article on apraxia with
information about children from a parents
perspective and information about CHERAB!
40 Early Warning
“Just a late talker” was a phrase two
mothers
kept hearing when they questioned their
children’s lack of verbal ability. Pressing
for answers, they discovered the mysterious
disorder called verbal apraxia and found out
about the importance of early intervention
and support. Dealing
with a Parent’s Worst Nightmare
by Jeanne Buesser, Outreach
Coordinator for CHERAB and President Apraxia
Network of Bergan County Evan’s
Story by Stacey Abenstein
former secretary of Children's Apraxia Network
  TV
show on Late Talker vs Apraxia
Not Just A Late Talker
TV Show
We crashed
the server...again!!
"Not Just A Late Talker" A half and hour talk show about verbal apraxia featuring parents and professionals from CHERAB
aired twice now on
CN8
on a show called "Real
Life"
We know that only the people
that receive the CN8 TV station were able to
watch the Not Just A Late Talker show on TV
even though CN8 has now aired it twice.
I spoke to the producer about what happened
and as you all probably know, in the media
world crashing the server for a second time is
not a bad thing. It sends a powerful message
to them and the world that there is extremely
strong interest in this area, and that there
are more than us than they thought.
Before CHERAB, most people looked at apraxia
as an unknown, and possibly rare speech
disorder. That may be because most just stuck
to the label "apraxia" which is
limiting since that label is controversial,
yet the reality is that children with the same
"late talker" symptoms are on the
rise. So no matter what you call, or your
doctor calls, or your school calls, or your
speech therapist calls, or your mother in law
calls, this speech disorder, or speech
impairment, there are more "late
talkers" today who are not "just
starting to talk" than years ago. And
there is something that needs to be done about
it to help all of our children, and all of us.
So again, we as parents
and professionals together as a group sent a
second (or third if you count Inside Edition
TV who STILL has our link up at http://www.insideedition.com/links.htm
out
of all the many shows they air) powerful
message on behalf of our children who in many
cases can't yet say it themselves. Together we
screamed it for them.
Also stay tuned
about our new T shirts -above is the rough of
the logo!
The Late Talker/apraxia half and hour talk
show last aired on CN8
http://www.cn8.tv on
a show called "Real
Life" at 6:00 PM 1/14/2002.
This show, titled "Not just a late
talker" (You know how everyone says
"Oh he's just a late talker!") is about apraxia from the view points of
parents (with their apraxic children) and
professionals. One of the new advisors
for CHERAB is on the show - Dr.
Judy Flax , who is a PhD in
charge of research for the Center for
Molecular and Behavioral Neuroscience at
Rutgers University - as well as (our resident
TV star) Cheryl
Bennett Johnson SLS MA /Educational
Consultant who is featured in two
commercials as the NJ Teacher
Representative-and one of the commercials was
aired twice during the show!! Due to another very
exciting project we are working on Marilyn
Agin MD was not able to make it to the
taping for this show, however there will be others!
(We'll keep you posted here!)
Since
they didn't get time to really talk much on TV
-listen to some of the children from the show
now (click on their picture)
If you just watched the show
"Not Just a Late Talker" and have lots
of questions...please join our online
group which is overseen by medical, speech
and educational professionals for answers about
what to do next! (If you missed the
show - click
here for details if you still want to see
it.) And if
you want to see pictures of Liz and Halley's
trip to NYC-and MARS - after the taping click
here.
 | To navigate through this
website -please click on duckie "index" |
| to see lots of other speech
sites that may help check out the  |
 "Imagine
being stuck in a world where you can understand
perfectly well, but you don't have the voice to
communicate."
Deborah Norville : Inside
Edition's segment on our organization, and
Verbal Apraxia. Inside
Edition's segment on our nonprofit and verbal
apraxia was scheduled to air Nationwide on
August 6th, 2001. Find
Out More!
Hear Apraxic
Children at The Talking Page.
Read
an "apraxia" online diary at Kids
Talk Back
Look
Who's Talking Now: Speech
Disorders and the Therapeutic Role of Essential
Fatty Acids like Omega 3
and Omega 6 and other press about Children's
Apraxia Network and CHERAB
Verbal Apraxia
or Late Talker? Speech
Delay or Speech Disorder? Apraxia or
Dyspraxia? Speech Language Impairment or
Language Learning Impairment? And what about, Autism / Mental
Retardation or Apraxia?
How could such
a widespread condition be so misdiagnosed and
misunderstood?
Late
Talker vs. Apraxia? Ask our Doctors.
Dr. Marilyn Agin is one of the key medical
professionals behind the CHERAB Foundation.
late
talker/ apraxia global partner support groups
The
nonprofit CHERAB's websites are for anyone who
cares for a child that has delayed speech, a
speech disorder, or is a late talker, etc., as
well as for those who care for a child that has
a received a diagnosis of "apraxia."
Right now you may be thinking,
"Apraxia, what's that?"
Apraxia
is a neurological disorder which can affect
the body, or speech, or both. There are other
apraxia and language sites and listservs on
the internet that have been around for many
years that answer some of this
question mostly from the opinions of parents or
Speech and Language Pathologists.
Then
why doesn't everyone know what apraxia is?
We
believe the views of the medical professionals
are critical not only for helping our children
individually, but to raising awareness about,
evaluating and treating neurological disorders
of speech globally. This is why the
nonprofit CHERAB Foundation, which is
overseen by developmental
pediatricians, is affiliating with
hospitals and is working together with various
types of medical, speech, and educational
professionals.
Not
every mosquito bite leads to West Nile Virus,
not every tick bite leads to Lyme Disease, and
not every "late-talker" leads to
apraxia. However, you and your child's
pediatrician should be aware of the warning
signs of apraxia, for the same reasons you are
aware of the warning signs of Lyme Disease and
West Nile Virus, so there could be early
detection, and early treatment!
I
wish that when I searched under the words
"late talker," or "delayed
speech" a site like this came up
As
the President of the non profit CHERAB,
it is also apparent that far to many people,
parents and professionals included, do not know
the importance of early intervention for
children that are "late talkers."
Many of these same parents and professionals
still do not know what apraxia is, so therefore
do not know some of the simple warning signs.
The President of the Self Help Clearing
House, has compared our nonprofit group to a
small support group for Lyme Disease before
anyone knew about it, before he let the TV
show 20/20 know about them. He believes
people will respond the same way they did to
Lyme Disease once they do know about apraxia.
Lisa
Geng,
President
and Founder with Dr.
Agin of CHERAB Foundation Below
is a picture of me, my husband, and our two late
talkers, Dakota and Tanner: the inspiration
behind CHERAB.
 Family
Picture from top left, Glenn, Dakota,
(our first "late talker,") Lisa, and Tanner,
(our second "late talker" who we used
to call the "Serious Babe.")
What
nobody knew then, including Tanner's first
pediatricians, or his first Speech and Language
Pathologist, was that his lack of facial
expressions was one of the warning
signs of oral apraxia, a condition that CAN
be diagnosed earlier than verbal apraxia.
|
Urgent Request:
 | How you
can help for the sake of apraxic
children everywhere. |
|
 Share
the holiday spirit. Get an inside Peek At
this Year's Children's Holiday Gala Event!
Thanks
to Seton Hall University Law School!
Here
is information about the March 23, 2001
Gala Event at Seton Hall That Benefited
our nonprofit.
We
are proud to announce that we were voted
as the primary recipient of Seton Hall
University's Law School's Competitive
Grant. Here
is the information.
Because
of this Grant, as well as the continued
wonderful support of our current
sponsors and others, the CHERAB Foundation
will soon be able to:
| Provide
subsidized
screenings for speech and language, as well
as subsidized group therapy for the
children. |
| Begin
various research projects with
participating hospitals, physicians and
speech and language pathologists. |
| Create
much needed new schools/ and or
educational programs for apraxic or other
severe language disabled children. |
| Raise
awareness to the medical community,
which will raise awareness to the general
public, about apraxia, and the importance of
Early Intervention for any child who is non
verbal at 2. Our goal is to have
professionals and parents learn the benefits
of Early Intervention, even for children who
it is believed "only have a delay in
speech." |
Join
the CHERAB Foundation's information
list
Late Talker vs. Apraxia? NEW:
Find out live at our meetings, or on line,
coming soon virtual meetings with the medical
and speech experts at speechpathologist.org,
also:
CHERAB
Apraxia Survey For Magazine Article
A writer for a
major magazine is on the CHERAB
information list, and has sent out a list of
questions for both parents, as well as
professionals. Our list, which is overseen
by Developmental Pediatricians Dr.
Agin, Dr. Laveman, and other medical, speech
and educational professionals who are there to
answer questions, has the option of viewing
these posts online once you are a member.
CHERAB
List
Disclaimer:
This information and resources on the "Late
Talker vs. Apraxia" Site is for educational
purposes only. CHERAB Foundation is the
largest personal support for apraxia in the
world, and welcomes other organizations that
provide help for those with speech delays or
disorders. As a mom to a child with
apraxia of speech, and the President and
founder with Dr.
Agin of the nonprofit C.HERAB
Foundation, I am not engaged in therapeutic
advice or professional services, but work
together with various speech, educational and
medical professionals. The information provided
should not be used in place of professional
advice or care. If you have any speech related
questions or concerns you should contact your
child's speech language pathologist or have your
child evaluated by one, and also take your child
to a developmental pediatrician or neurologist
that is knowledgeable about apraxia and other
disorders. Any resource or link does not
imply endorsement. Special Thanks to
our "cherub" Tanner, the
inspiration for CHERAB (And Three Websites For
Apraxia!)
|
