When you get to the Atlantic City Convention Center
-please ask for
the New Jersey Speech Hearing Association Conference -and proceed to
their registration table. They will be able to inform you where the
CHERAB Foundation meeting will be. Right now we are not sure what
rooms will be used for either the NJSHA conference or the CHERAB
meeting -as we get closer to the date we'll keep you posted here and
at the CHERAB grouplist.
New Jersey Speech Hearing Association's
FULL DAY ADVOCACY TRACK
hosted by Lisa Geng CHERAB Foundation
Atlantic City Convention Center
2001 Kirkman Blvd.
Atlantic City, NJ 08401
Click below for directions
to Atlantic City Convention Center
The full day's events for the New Jersey Speech
Hearing Association's Full Day Advocacy Track will be hosted by Lisa
Geng, President and Founder of CHERAB Foundation. This will be a
day that as a parent you won't want to miss. Knowledge is
powerful in helping you to help your child.
Schedule of Events
District Self Assessment: An instrument for Change Penny Dragonetti
Statewide Parent Advocacy Network
Section 504: How to Utilize the Federal Statute for the Benefits of
Disabled Students Through Age 21 Cole, Schotz, Forman & Leonard,
Medicaid Managed Care and Children with Special Health Care Needs
Lauren Agoratus, MA SPAN
Working Lunch -Parenting and Stress Management Dominique
Behavioral Interventions at Home" Change Your Behavior -Change
Child Michael C Selbst PhD
It Takes Two to Talk Jan Pepper MCISc The Hanen Program
Please send registration form and check (payable to NJSHA) to
NJSHA, 203 Towne Centre Drive, Hillsborough, NJ 08844
Apraxia Day Picnic
VAN SAUN PARK
(MEET IN AREA D-PARK IN LOT 4)
216 FOREST AVE, PARAMUS,NJ
SAT. MAY 4TH, 2002
Directions to Van Saun Park
This is the third year that Jeannie Buesser's non
profit the Apraxia Network of Bergan County is throwing the Apraxia
Day Picnic for all of us! CHERAB is assisting and supporting the
efforts of this fun family event. No donations are being
collected for CHERAB, however a ten dollar donation per family is
suggested as support for the Apraxia Network of Bergan
County. Make sure to fill out the (duckie) name badges when you
Lots of places to play and run! The park has a
zoo, pony rides, a train, and a carousel! Here are just
some of the planned events:
Dessert (who put that
Games, Crayons/coloring table. All family events will have paper and crayons at
the CHERAB table including the day of the Family Fair so that if you
want to submit your child's art work for the art festival coming up in
May you will have many opportunities!
Entertainment for the children!
Pizza/Soda will be served at 12:00pm sharp at Picnic Area D
(If your child is allergic to the pizza, please provide a lunch for
RSVP by April 25th to :(Jeanne)
(201) 741-4035 or (908) 626-KIDS (5437)
Wednesday, May 15th
9:30 AM - 2:30 PM
Middlesex County College (College Center Building)
2600 Woodbridge Avenue Edison, NJ
Directions to Middlesex
Here is a wonderful invitation for an event all of our children can
participate in -even if they can't attend personally.
What a great opportunity to raise self esteem and confidence...your
child's first art show!
If you would like your child to participate -just send a picture
that your child creates in paint, crayon, marker, finger paint, etc.
of any size. Please be sure to include your child's name, and
the "title" or name of the picture if there is one. Age
and State/Country are
optional. If you want the art work mailed back please include a self
addressed stamped envelope.
Please send your child's drawing or painting to
657 Valley Road Box 339
Gillette, NJ 07933
The NJ Statewide Arts Festival sponsored by the National Endowment
for the Arts, the New Jersey State Council on the Arts, the United
Way, and VSA arts, under an award from the US Department of
Education will host the 19th Annual Partners in the Arts Festival.
"Partnersin the Arts is a festival that fosters the integration
of individuals of all ages, with and without disabilities in the
celebration of the arts. Children and adults, individuals and groups
are invited to this enjoyable, enriching, fun-filled day. The event
will be held on
Wednesday, May 15 at Middlesex County College in Edison, NJ from
9:30 AM to 2:30 PM at the College Center Building. This event
fosters the integration of individuals with and without disabilities
in the celebration of the arts. Children and adults, individuals and
groups are invited to participate in this enriching, fun-filled day
of performances, "artstop" workshops, exhibits,
This event is free of charge -just pack a lunch and a beverage
enjoy!" We will try to take great pictures of the display and
event for all of you to see!
VSA -History from their website: Established in New Jersey in 1978
and co-sponsored by the Middlesex County Cultural & Heritage
Commission, this state-wide not-for-profit is part of the
international VSA arts network which serves 47 states and 87
National VSA arts was founded by Jean Kennedy Smith as an affiliate
of the John F. Kennedy Center for the Performing Arts in Washington,
DC and is designated by Congress as the national coordinating agency
for arts programs for individuals with disabilities. On the local
level, VSA/NJ programs provide expanded art opportunities for the
1,000,000 New Jersey residents with disabilities.
It will be great to see you at the events!
for documentary (as posted to our grouplist)
From: "Lisa Geng" <Lisa@KiddieTalk.org
Date: Thu Mar 28, 2002 4:00 pm
Subject: Directors for a major network documentary (2nd)
request for CHERAB
Happy Holidays to all!
I just got an urgent request from the producer from the
mentioned below (that will be aired all over!!) that they want to
one more child to be filmed right now -or right away - in the NY
area. Below is the original message from a few months ago and I
many people contacted me back then -but other than Marci from NYC
who is the support contact for NYC and one of the mom's the
producers interviewed already, I didn't keep a list of names of
the rest. I know some people didn't want to wait to supplement
with the ProEFA - and it was a wait. Well if you did happen to
wait, or you are new to the list, this is an incredible
opportunity to document your child
before and after EFA supplementation in an educational documentary
which is being reviewed and overseen by leading doctors. Talk
an incredible opportunity to get the word out about what we as a
small group are seeing...and hearing!
If I can -I just want to take a moment to say something. New
ask us if we really see results with EFA and it's typically the
to our group parents that answer -did you ever notice that? After
all once you answer once -and the question pops up again a few
later -and then again. In addition to that - there is another
its the newer parents.
It used to be that if a child was diagnosed with apraxia, PDD or
autism, it was a hard future ahead for all. The EFAs have
changed that in many cases overnight. The road is still hard work,
but the light, it's there now, you know? The progression sometimes
is so rapid that it subsides the worry. I can't tell you how many
parents post to this list all scared and upset about the diagnosis
who write to us amazed when they first started the EFAs -typically
ProEFA, and then you don't hear from them much because their child
talking, interacting -and they can move on!!
I appreciate that feeling. Face it -we are all busy people -I'm
still here with all of you because my goal is to get the word out
that other's can know this information that we as a group now take
for granted...so we can help all the children. Everytime I hear
about a child that talks for the first time on EFAs I get chills.
Just today I spoke to Mauri Blefeld's husband (Mauri runs the
Children's Apraxia Network of PA) Her son, when I met him a bit
a year ago when he was seven -was using an augmentative device to
speak for him, and some of his vocalizations sounded like grunts.
Mauri's husband told me how his son -who is just a few years shy
of ten years old, started to progress rapidly on the ProEFA -and
now just months later he's speaking in two word sentences and
doesn't want to even use the augmentative device anymore.
Because...He's talking!! Just think how many parents just like
Mauri don't know to try just giving their child fish oil -I mean
it sounds lame doesn't it?
This again is that opportunity to give our children, and the
communication impairments that blocked them, a voice - to the
children like ours out there who have mom's and dad's that don't
computers, or who can't afford private evaluations -what happens
those kids? What could happen if more knew about this? It's not
name brand like it would be in a drug -it's the formula of DHA,
and GLA -and anyone anywhere could make that. (And no I don't want
to say here what I'm doing yet with my own children that I've
confidentially shared with a few others -but when there is enough
anecdotal results from others of what we are now giving to our
children along with the ProEFA I will share it.)
This documentary and all the events coming up are all chances for
of you to be involved and show you do care about communication
impairments in children -a condition that is the "so
impairment of all time. So what?! We can all tell the story
of "what" and why we need awareness - please don't lose
when we together can use it to help all of the children -which
ultimately help your own child and mine much more than anything we
could ever do alone.
Everything (I know -I know, "will be posted to the
soon") Please call me at the CHERAB
number 908-626-KIDS (5437) or email me at firstname.lastname@example.org
if you are interested in the following -you would have to be in
the NYC triState area. Read on...
--- In childrensapraxianet@y
"Lisa Geng" <Lisa@K
Directors for a major network documentary (2nd) request for
If you have not supplemented your (late talker/apraxic) child
with EFAs, and are from the NY area ~please read this before you
decide to start.
I met with the associate and executive directors a few weeks ago
about a documentary that they plan to include us in, that they
now shooting for one of the large nationwide network stations.
have since then called a few times to find out the results of a
request that we sent out to this list, which I'm going to repost
"I have an important request for any of you that has not
your apraxic child yet-but lives in New York, New Jersey,
Connecticut, or Pennsylvania close to NYC.
Since almost all of the children have pretty dramatic results in
a few days to a few weeks of Omega 3/6 supplementation, they
like to include in the documentary footage of children before
after ProEFA supplementation. They may consider autistic
well-but speech is the main aspect.
If you are interested, please email me at email@example.com
at kiddietalk.org) or call me at 908-626-KIDS (5437) to give me
name and phone number and child's age and diagnosed condition.
please let her know how many medical or therapy professionals
they can interview) are working with your child, and for how
months or years. If your child is not testing well in the school
tests given, please include that as well."
After the last message was sent out we only received three
and the producers are planning to begin filming right after the
Holidays in January-so it wouldn't be that much longer you would
to wait! If you are one of the three parents that contacted
Smolyar already and you are still interested (and have not yet
supplemented your child yet) please contact me this time.
This documentary will be completed by this Spring and is due to
sometime next Fall.
The above request will not be posted on the http://www.apraxia.cc
website yet because they are only in need of about 5 to 10
for this, but please feel free to share this message with other
you believe would find this exciting news relevant.