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Past meetings
March 2002 January 2002 December 2001 event November 2001 October 2001 September 2001 August 2001 July 2001 June 2001 May 2001 March 4, 2001 “What is Sensory Integration Therapy?...(and what is Sensory Integration Disorder anyway?!)” (Or, you asked about this, so here is your chance to find out more!) Speaker: Christine Horvath, MS, OTR, Clinic Coordinator for OTC’s Clinic at Somerset "I know my child is just a late talker, but just in case can early awareness and intervention help if my child does have a problem outside of just a speech delay? What signs should I look for? What if he passes all his developmental milestones early, then he's OK right? I know my child is fussy, but he is not spoiled like people think, he just needs to have his way lots of times..." When a child is diagnosed with a notable
communication disorder parents may have heard or been told that
their child may also have a dysfunction in sensory integration. With these words, heads begin to swirl and minds wonder:
What is sensory integration?
How do I know if my child is showing signs of such a
dysfunction? If they
show these signs, what should I do?
How can I get more information?
Who can help me NOW?!?! Christine Horvath, MS, OTR, Clinic Coordinator for OTC’s
Clinic at Somerset will be joining us on March 4, 2002 to answer
these questions and others you may have concerning this problem.
Christine has a wealth
of pediatric expertise and a broad understanding of sensory
integration issues faced by our families and their children.
At OTC’s Clinic at Somerset, she and her staff provide services to
many children with Dysfunction in Sensory Integration (DSI). Christine holds an advanced Masters Degree in Pediatric Occupational Therapy from Boston University and is certified by Sensory Integration International. She has worked at nationally recognized children’s hospitals, within public and private school systems, and as part of interdisciplinary early intervention teams. Prior to joining OTC’s Clinic at Somerset, Christine founded and directed a private pediatric practice in the greater Boston, Massachusetts area. The practice specialized in the evaluation and treatment of children with DSI. During this time, she was frequently sought out as a lecturer and consultant by educators, health care professionals, and the Boston community at large. January
7th, 2002 “A New Year Of Possibilities to Bring Our Children a Voice”It's a new year, a time to learn how to proceed to help your child as he/she grows older. Worrying about school issues, upset about future teasing, feeling alone and overwhelmed and under prepared for what's ahead... well then this is a Happy New Year message for you from our Executive Vice President Cheryl Bennett Johnson SLS/MA.
"Cheryl's Way
My parents wanted to find out as much information as they could about Apraxia of
speech. When I found the web-site for The Children's Apraxia
Network, I was thrilled. I immediately emailed the CAN founder, Lisa Geng. My first meeting was
amazing. Upon
seeing over 40 parents and professionals meeting to support one another in understanding Apraxia of speech was empowering. At the conclusion of
the meeting, I called each of my 4 kindergarten parents to give them the CAN website.
They continue to thank me for going that extra mile in helping them understand
how they could help their children become
successful talkers. Three out of four of my kindergarten parents
indicated, that they wished they had enrolled their children in an early intervention speech therapy
program, or were at least informed that one existed that would help their
child. Although, my parents have not attended a CAN meeting, they continue to visit the website. Also at this meeting we will discuss the upcoming January 14th airing of the 1/2 TV News show (an entire half hour show!!! Not five minutes!!) that will feature Cheryl Bennett Johnson SLS/MA (who will discuss educational challenges of children of speech disorders), Marilyn Agin MD (who will discuss the importance of early intervention) Lisa Geng (who will discuss the importance of support and parental signs to look for in a "late talker") and surprise guests (Maybe Haley will be flying up from Georgia with her mom!)
Our December
Holiday Event! Please click here for a look at December's spectacular Holiday Event that celebrated our children
November
5, 2001 PRESENTERS: CHERAB Foundation Scientific Staff
Robert Katz, Ph. D.,
President, Omega-3 Research Institute, Inc.,
Bethesda, MD Marilyn Agin, M.D., Medical Director, Early Intervention, New York City, NY Lori Roth, M.A., CCC-SLP, Speech Pathologist, CHERAB Foundation, NJ Research on Apraxia/Dyspraxia of Speech at the CHERAB Foundation: Where Did We Come From, What Did We Find and Where Are We Going?" Meeting TOPIC:
Lisa Geng, President, CHERAB Foundation had strong
faith in
what she called "healing power of essential fatty acids (EFAs) in verbal apraxia". She used the internet effectively to share her belief with other parents with apraxic children. By early this summer it was clear that the anecdotal stories have to be urgently placed on a scientific basis. She asked Dr. Marilyn Agin and me to suggest scientific approaches to the entire issue of EFA supplementation in verbal apraxia. We set out through CHERAB to organize the First Conference for Therapy of Verbal Apraxia/Dyspraxia, July 23-24, Headquarters Plaza Hotel, Morristown, New Jersey, documented the outcomes of EFA supplementation through reports by speech pathologists, analyzed the reports, assembled a venerable group of experts and following their recommendations undertook the preparations for a randomized, placebo-controlled double blind clinical trial. This trial is absolutely essential to allow broad professional scrutiny of this potential new therapeutic modality.
After presenting our findings at the "Fatty
Acids in
Neurodevelopmental Disorders-2001," September 20-21, St. Anne's College, Oxford University, Oxford, U.K., followed by extensive discussions and planning we assembled the clinical trial group and designed the clinical protocol. The presentation will lead the audience through the above process and will solicit reactions to the proposed protocol.
SPEAKER BIOGRAPHIES
Marilyn C. Agin, M.D., Medical Director, CHERAB Foundation, graduated from New Jersey Medical School in 1986, followed by a combined residency in Pediatrics and Physical Medicine and Rehabilitation at New York University Medical Center. She is board certified in both fields. Prior to medical school, Dr. Agin received her master's degree in Communication Disorders and was a practicing speech pathologist. Currently, Dr. Agin is the Medical Director of the New York City Early Intervention Program and does private neurodevelopmental evaluations primarily for children with communication disorders, learning disabilities, and autism,. She is a member of the New York City chapter of the Committee on Children with Disabilities of the American Academy of Pediatrics (AAP), and has been appointed to the Executive Council of the New York City chapter of the AAP. Robert Katz, Ph.D.,
Director for EFA Research, CHERAB Foundation,
received his degree in Organic/Medicinal Chemistry from the Hebrew University, Jerusalem in 1972. During his postdoctoral fellowship (1972-1973) at the National Institutes of Health (NIH), Bethesda, Maryland he worked in computer-assisted drug design of analgesics and molecular pharmacology of neurotransmitters. From 1978 to 1993, Dr. Katz was Director of Metabolic Diseases Research Program, National Institute of Diabetes, and Digestive and Kidney Diseases, NIH where he administered and managed nation-wide research programs in membrane structure and function, membrane protein crystallization, structural biology (proteomics), enzyme replacement and gene therapy, etc,. He organized workshops and conferences in these areas and identified research directions in need of development. Since leaving the NIH full time position, (1993), Dr. Katz has developed DHA- and EPA- derivatized polycationic-lipophilic drug carriers to the CNS. In 1998 he founded the Omega-3 Research Institute, Inc. (O3RI), where he co-organized international workshops on omega-3 fatty acids in brain function, in diabetes and its cardiovascular complications, in molecular and cellular aspects of cancer and recently in verbal apraxia/dyspraxia. During the last year Dr. Katz founded the Consortium for Brain Fatty Acids, O3RI, a "center without walls" that is providing a broad range of expert research support to parties that require such. Dr. Katz is currently a consultant to the National Institutes of Health. In addition, Dr. Katz is co-developing the CHERAB Foundation's EFA-based programs.
Lori L.
Roth, MA, CCC-SLP, is a Speech-Language
Pathologist and Oral Motor Specialist with over 25 years of experience. She received her BA degree in Psychology from G. Washington University in Washington, D.C. in 1972. In 1974 she was awarded her Masters of Speech and Audiology from the Catholic University of America in Washington, DC. Ms. Roth's experience includes home- and hospital-based rehabilitation, private and public school intervention and private practice. Lori Roth was instrumental in establishing an Infant Stimulation Program (called Early Intervention) in Annapolis, Maryland. She has mentored and trained graduate students in Speech and Language Pathology from New York University, Columbia University, Montclair State University and The College of New Jersey as well as practicing therapists in the State of New Jersey. Ms. Roth has presented professional workshops for colleagues and regularly acts as a consultant for private and public schools. October 1, 200 "In Light of The Tragedy" Support Meeting
"In Light of The Tragedy" Support Meeting
October 1st, 2000 was a time where most schools and homes already had fun orange and golden Halloween and Fall decorations of leaves and pumpkins sprinkled around. Parents talked with each other about what costumes their children would wear. Adults put candy corn in candy dishes on their desks at work. Stores were stocked high with yummy tricks and treats... The CHERAB Support Meeting for October 1st, 2001 was originally scheduled to share information from the Oxford Conference in the UK September 20-22. Originally, Marilyn Agin MD, Robert Katz PhD, Lori Roth MA CCC-SLP, Suzanne Smolyar and I were invited by Dr. Alexandra Richardson and her colleagues at Oxford to attend and present our scientific findings from CHERAB at the Oxford conference. After the attack, at first we all cancelled due to fears of flying to the UK the week after. Then Robert Katz did choose to attend the UK Oxford Conference to present the poster presentation from himself, Marilyn Agin MD, and Lori Roth MA CCC-SLP on behalf of CHERAB Foundation. Thanks to Dr. Alexandra Richardson and the Oxford Conference and thanks to Dr. Katz, we do have great and exciting information to share that will help all of our children, and we will share that... next month. Like the Oxford Conference, we originally had thought of canceling this October 1st, 2001 meeting, and then decided to go ahead with it, for the following reasons. The 9-11 attack on the World Trade Center was a horrific day that changed all of our lives. Over six thousand innocent and unsuspecting moms, dads, brothers, sisters, friends, neighbors, coaches, teachers, and children, all who were around last October 1st to get caught up in the innocent and meaningless seasonal activities, were horrifically killed in a cowardly attack. It changed us because it showed many of us personally, just how low and evil a human is capable of being towards humanity. Many of us in the New York area were affected personally. Images are not just of pictures. Images are memories of our children's school, our husband's place of work, our home...Images are now of people from all countries (who yes all live together in harmony in New York) working together in love and pride to help each other and support each other. We know that there is good and evil in the world, and it's what we choose to align with. Most of us choose to build rather than knock down, most of us choose to support, rather than condemn. It changed us because it showed many of us personally, just how beautiful and loving a human is capable of being towards humanity That's the spirit and belief that all of us from CHERAB Foundation would like to share for this month's meeting. In memory and in light of the tragedy, we are still standing, and together we are still helping each other, and helping our children and sharing goodness. This month's meeting is for anyone that wants to come out and just talk among friends, and have some questions answered. Larry Laveman MD will be one of the professionals on hand to answer questions you may have about your child during these times. CHERAB Foundation is here to support, build, and help all of you, and all of your children.
September
10, 2001 (Or, you asked about this, so here is your chance to find out more!) Speaker: Stacey Greenwald Esq. Sussan and Greenwald Esqs. What lies ahead for a child with a communication challenge when it comes to school? What are your child's rights? Your answers to these simple questions are vitally important no matter how old your child is: Whether your child is turning 3 within the next few months, or sooner, and you want to know what to ask your town's school. Or whether your child is already in a preschool disabled program, but he or she is turning 5 or 6, or older, and you are now looking at "appropriate" placement. There are many things to consider, and who better to advise us then Staci Greenwald Esq. who was a special education teacher before attending law school, and has a degree in speech pathology. So Staci is not only knowledgeable not only about the special ed law, but about the conditions themselves. In becoming a strong advocate for your child, it's best to empower yourself with the knowledge that can help to make the road easier for you and your child. Staci Greenwald Esq is one of CHERAB's most popular and requested speakers, you will not want to miss the opportunity this meeting brings to all of us, by once again bringing us Staci Greenwald Esq.
' Staci Greenwald was a special education teacher before attending law school. She has a degree in speech pathology, and is a Certified Teacher of the Handicapped. Her contributions to the firm deal with representation of the disabled in various forums, from the Office of Administrative Law to the Federal Courts. Besides special education issues, she offers advocacy in matters involving the Division of Developmental Disabilities (DDD) and guardianship. Staci Greenwald, and her partner Ted Sussan, have invested hundreds of hours in helping parent groups, educators, learning consultants, Judges and other lawyers interested in keeping abreast of this quickly changing area of law. The following is from Sussan and Greenwald's website "The Firm’s practice is limited to the representation of disabled children and their parents in matters involving disputes with New Jersey school districts...The law affords specific rights for all disabled students between the ages of three and twenty one. Sussan & Greenwald's commitment is to enable parents to actively and effectively advocate for their children."
August
6, 2001 "PROMPT--Can This Therapy Can Help My Child?” Speaker: Barbara Goldfarv Portnoff, M.A. CCC-SLP
CHERAB's speaker for August 6th, 2001 is Barbara Goldfarb -
Portnoff MA CCC SLP, Certified
PROMPT Instructor who is one of the handful of people in
the world who trains other professionals on PROMPT.
Barbara attended the first
conference for apraxia this past Monday and Tuesday, and will
be speaking on the night of the National airing of Inside
Edition's segment on verbal apraxia which features various
families and professionals from CHERAB. All the children
featured in Inside Edition are at Scott Bilker's talking
page Please check your local listings for the
times and channels as to when Inside
Edition will air by you. This August 6th meeting will
also mark another anniversary year for CHERAB!! We
plan on having a celebration cake to mark this event in
celebration of our hugely successful conference, Inside Edition,
and CHERAB's anniversary. Each attendee of this celebration
meeting will receive the handouts from CHERAB's historic
landmark conference for apraxia.
SPEAKER BIOGRAPHY
Barbara Goldfarv Portnoff, M.A. CCC-SLP, is the founder and director of TIKES, Therapeutic Intervention for Kids and Educational Support, a private practice in New Jersey devoted to the evaluation and treatment of children and adolescents with communication disorders in the tri-state area. Barbara has extensive experience working with autistic and PDD populations, language impaired, and oral-motor and speech motor disorders. She also has specialized training in Applied Behavioral Analysis (ABA), behavior management, pragmatic and developmental approaches. Integral to Barbara's therapeutic philosophy is her commitment to consulting regionally with school boards, parenting and other professional groups. PROMPT has been an important component of her practice since 1993. Barbara holds her Certificate of Clinical Competence, and State Licensure for New York and New Jersey.
. July
9, 2001 “Mercury - and Its Role in Communications Disorders”(Or, you asked about this, so here is your chance to find out what this means!) Speaker: Sallie Bernard: President of ARC Research Mercury
(Hg) is considered one of the world’s most dangerous chemicals.
Current thinking suggests that exposure to mercury is
primarily from seafood contamination and rare catastrophic events.
Recently, another common source of exposure has been
identified.
Thimerosal (TMS), a preservative found in many infant
vaccines, contains 49.6% ethyl mercury (EtHg) by weight.
As part of an ongoing review, the Food and Drug
Administration (FDA) announced in 1999 that infants who received
multiple TMS-preserved vaccines may have been exposed to cumulative
Hg in excess of Federal safety guidelines. Neurobehavioral
alterations, especially to the more susceptible fetus and infant,
are known to occur after relatively low dose exposures to organic
mercury compounds.
June
4, 2001 Speaker:
Dorinne
S. Davis MA, CCC-A, FAAA
Many
of you that are professionals have probably already seen Dorinne
Davis speak about The Davis Center in the lecture circuit.
Dr. Marilyn Agin just saw her lecture and said she is
excellent. Dorinne
is really looking forward to presenting
Whether
you can attend the meeting or not, which will be filmed,
you "The
Davis Center's unique diagnostic expertise helps identify core
Dear Lisa:
I'm
writing to confirm that Dorinne will be speaking to your group at
St Barnabas Ambulatory Center in Livingston on Monday, June 4th
from 7-8:30 PM
The title of the lecture is " Regards,
Nancy
Puckett-Dunn, General Manager
The Davis Center for Hearing, Speech, Learning and Well-Being Phone: (973) 347-7662 Fax: (973) 691-0611 Dorinne S. Davis, M.A, CCC-A, FAAA is the President and Founder of The Davis Center for Hearing, Speech, & Learning, Inc. She is an Educational and Rehabilitative Audiologist with over three decades of experience. Dorinne earned her Bachelor's degree in Speech & Hearing and Speech & Drama; then a Master's of Audiology / Deaf Education, both at Montclair State College, NJ. She is certified in Speech Correction, Pre-school Education, Speech & Drama, Teacher of the Hard of Hearing, and Supervision by the NJ Department of Education. She is licensed as an Audiologist in NJ, NY, and PA. Dorinne is an active member of various professional organizations including: America Speech-Language-Hearing Association (ASHA); NJ Speech-Language-Hearing Association; American Academy of Audiology; National Education Association (lifetime member); NJ Education Association (lifetime member); Morris County Education Association (lifetime member); Kinnelon Education Association; Educational Audiology Association (past president 1988); and Association of International Berard Practitioners. Dorinne is an international lecturer in the field of hearing education and science. Her conference presentations are in high demand by many professional and civic organizations, as well as parent advocacy groups. Dorinne provides audiological consultation to a diverse community of medical professionals. Additionally, her center offers a portfolio of integrative Sound Based Therapies selected from years of diligent research and careful testing. In the field of Sound Based Therapies, Dorinne is a certified practitioner of Berard Auditory Integration Training (AIT), Tomatis®, The Listening Program™, the Fast ForWord™ Series, and is a BioAcoustic Research Associate. She is trained in Read-Spell-Comprehend (an enhanced version of Lindamood Bell), Samonas™, Interactive Metronome®, Earobics™, Lip-reading, Aural Rehabilitation, and the Tinnitus Relief System. In 1992, she received her Auditory Integration Training directly from Dr. Guy Berard and is one of only 50 members to be certified by the International Association of Berard Practitioners (IABP). Additionally, she is certified by Dr. Berard to teach Auditory Integration Training. Dorinne has a variety of published works, is the author of two books, the highly acclaimed "Otitis Media: Coping with the Effects in the Classroom", and "A Parent's Guide to Middle Ear Infections". Additional publications include a chapter on Television Amplification Devices in "Communication Access for Persons with Hearing Loss", edited by Mark Ross, and numerous professional articles. In 1998, Dorinne opened The Davis Center for Hearing, Speech, Learning and Well-Being. The Davis Center's unique diagnostic expertise helps identify core issues in the areas of hearing, speech, learning, language, and overall well-being for people of all ages. The center offers remedial and / or enhancement therapies that address challenges related to Autism, ADD, ADHD, Dyslexia, Hyperlexia, Apraxia, Dyspraxia, learning disabilities, central auditory processing, as well as minor learning / attention / focus related skills, and health and wellness issues. Today the Davis Center has staff of 17, which includes professionals in the areas of audiology, speech pathology, and educational development as well as listening trainers and BioAcoustic Research Associates. Date: June 4, 200
We will have our new feature book available for $16 (list price is $16.99) -"The New Language Of Toys-Teaching Communication Skills To Children With Special Needs" from Woodbine. Many SLPs as well as parents believe this to be an "excellent book for both parents and professionals!" This book will help you use existing toys from around your home to help "ANY" child who has a delay in speech. It even shows how to make toys that can be used for therapy, and explains why children may have delays in speech.
Ballentine Books will again provide Dr.
Stordy's book "The LCP Solution" at this meeting for $12
(list price is $14. Orders by mail are slightly higher to
compensate for shipping costs,) and this will be a fund raiser as
well! Dr. Agin believes this to be a credible book, "that
is worth exploring." Please let us know when you RSVP how
many books you would like.
If you can not attend our meetings but
would like to support our non profit and benefit from the low prices
we offer on the "must have" items we offer, please email me
(Lisa) at kiddietalk@yahoo.com
We will have Nancy Kaufman's Speech Praxis Kits both beginner and advanced available for you to look at, or purchase. May 7, 2001 Speaker:
Justine Joan Sheppard, Ph.D., CCC-SLP
The
following is a statement from Dr. Sheppard about this month's meeting
/ Dr. Sheppard's bio. As many of you already know, she is one of
the speakers for this year's NJSHA convention where she will speak
about educating hearing apraxic children in schools for hearing
impaired/deaf children. This will be a fascinating meeting with
a world renowned expert on oral motor disorders. Not only will
we learn how to distinguish apraxia vs. late talker, but we will learn
how we can help our children with apraxia learn to talk at home!
As always, we will have a question and answer time after the meeting.
"We
will discuss the basic problems in apraxia that may interfere Dr. Sheppard is Adjunct Associate Professor of Speech Pathology at Teachers College, Columbia University where she teaches courses and workshops in dysphagia, infant intervention and treatment of oral motor dysfunction. Her research interests are oral pharyngeal reflexes, dysphagia in developmentally disabled and mentally retarded populations and acquisition of oral motor behaviors. She has given many workshops and papers and is the author of several publications on infant development, oral motor assessment, and feeding and swallowing disorders. Her
publications include, Pediatric Dysphagia and Related Medical,
Behavioral, and Developmental Issues, in B. Sonies (Ed.) CHERAB Foundation's EFA Feedback
Research CHERAB Apraxia Survey For
Magazine Article Date: May 7, 2001 Our
January 8th meeting was of interest to
anyone who has a child with neurologically based disorders like
apraxia, and was interested in apraxia research. We had an
incredible speaker for this subject,
Dr.
Patricia Kane, who is one of the
world's authorities on EFA supplementation. We
would like to thank the Children's Specialized Hospital for taping
this brilliant presentation, where she covered some of the information
on mercury in fish, before it was
released by the FDA and 20/20. We would
like to also thank the developmental pediatricians, Dr.
Marilyn Agin and Dr. Carfaxo,
who were there to answer questions. More information coming soon on research projects/foundation. If you are not able to attend our meetings, but are interested in working with us in various research projects as a parent, professional, or hospital, please email Dr. Marilyn Agin at Mamadoc111@aol.com or Lisa Geng at kiddietalk@yahoo.com Coming soon virtual meeting with the experts, as well as the ability to "attend" our meetings online. Join our information list to find out upcoming dates.
We
will have our new feature book available for $16 (list price is
$16.99) -"The New Language Of Toys-Teaching
Communication Skills To Children With Special Needs" from
Woodbine. Many SLPs as well as parents believe this to be an
"excellent book for both parents and professionals!"
This book will help you use existing toys from around your home to
help "ANY" child who has a delay in speech. It even
shows how to make toys that can be used for therapy, and explains why
children may have delays in speech.
Ballentine Books will again provide Dr.
Stordy's book "The LCP Solution" at this meeting for $12
(list price is $14. Orders by mail are slightly higher to
compensate for shipping costs,) and this will be a fund raiser as
well! Dr. Agin believes this to be a credible book, "that
is worth exploring." Please let us know when you RSVP how
many books you would like.
If you can not attend our meetings but
would like to support our non profit and benefit from the low prices
we offer on the "must have" items we offer, please email me
(Lisa) at kiddietalk@yahoo.com
We will have Nancy Kaufman's Speech Praxis Kits both beginner and advanced available for you to look at, or purchase. Here are some other scheduled events. For more information, please sign up for our informational email list by clicking on the egroups button below.
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Staci
