Coromega and other pure Omega 3 formula's like it and ProEFA
and other Omega 3 and Omega 6 formula's like it are not the same
things even though they could all be good quality fish
supplements. Coromega, Cod Liver Oil and
DHA Jr., etc are
only Omega 3 from fish oil (DHA and EPA) supplements vs ProEFA or
Efalex which are Omega 3 from fish oil (DHA and EPA) and
Omega 6 from Borage Seed Oil or Primrose Oil, etc. (GLA)
supplements. If you get the oil from the liver-such as in
cod liver oil-then it will naturally contain Vitamin A. Some
doctors and parents like Omega formulas with the Vitamin A-and
some don't-so keep this in mind.
As far as taste, it depends -some like one and not the others.
Some hate them all-and parents give them to their kids anyway.
The main reason that most people use the dietary supplement called
ProEFA is that most children have much more dramatic results on
ProEFA in much less doses than the rest -but please check with
your child's doctor and as long as the supplements are from good
quality companies try a few of them and see for yourself.
I mean, if we were just going to go by taste-I doubt most of us
would be using fish oil at all!
For those who want or need an EFA supplement
without fish oil (if the child is allergic to fish for example)
you could try Flax seed oil. However- please read what Dr.
Katz says about Flax seed oil:
"Flax seed oil or freshly ground flax seeds are an excellent
the essential omega-3 alpha-linolenic acid (ALA or LNA) which is
quintessential parent member of the omega-3 family of essential
acids (EFAs). The body transforms it into EPA and the EPA
This transformation is very inefficient (the yield is about 10%)
is further inhibited by over consumption of omega-6 fatty acids
most vegetable oils or certain disease states. Therefore, it
advisable to independently consume also ready made EPA and
DHA from good quality fish of from high quality fish oil
recommended intakes are listed on the Introductory lecture on EFAs
that I gave at the First Conference on Therapy of Verbal Apraxia,
July 23-24, 2001, Morristown, NJ. (http://www.apraxia.cc)
The CHERAB Foundation's positive research results on potential
improvement in speech following EFA supplementation are based on
use of ProEFA (Complete Omega) and that contains also another
essential fatty acid, GLA which is an omega-6 fatty acid. The
appears to be beneficial to children with apraxia. It is not
in flax seed/flaxseed oil.
None of these materials present with any known side effects or
known toxicity in an otherwise healthy person. Nevertheless,
advise every user of supplements to use them under medical
supervision. We don't know your child and we cannot provide you
Robert Katz, Ph.D.
CHERAB Foundation Director of Research"
My 5 year old apraxic son Tanner is a trooper and
takes the ProEFA
from a spoon every day. I hold his nose for him, but he
the taste. We started the holding the nose thing when Tanner
take the efalex, which is very fishy smelling and tasting, and
kind of our ritual now.
I rip only half of the protective waxy seal off the top of the
bottle, and put a pin in the part that is left. When it's
give Tanner his ProEFA, I open the top of the bottle, pull out the
pin, put a hole in the capsule, put back the pin, and squeeze the
onto a spoon.
Here are some other things we used to have to do when Tanner took
the efalex which he hated. (Efalex is fishier tasting and
1. We would put just put a drop of fish oil in the middle of
bread for a sandwich and cover with peanut butter, a drop in the
middle of a pancake, a drop in the middle of a bowl of spaghetti.
etc. if we put too much fish oil, Tanner would not eat the
2. Glenn and Tanner and Dakota would each hold a cup filled
dash of juice. Tanner's juice was always "spiked"
Tanner is very competitive and would love a good race. "Ready
Go!" and Glenn would hold the cup to his mouth without
then stop and have all three compare who drank the most. Of
Tanner was winning! They would keep doing this until Tanner
(which meant he finished the efalex fish oil spiked juice)
3. I used to bribe Tanner with gummy bears that he could
after. Didn't work as good as the first two. But for a
long time we
did a combination of number one and number three.
4. Tanner's older brother started taking the fish oil, and
wants to do what Dakota does.
5. As Tanner got older, at about four, we started calling
oil "yucky magic fish oil which helps you talk" and we
really made a
big deal about how yucky it was, and would "show off" to
Tanner could take this yucky stuff and eat it right off the spoon.
It worked for Tanner!
It was lots of work, but well worth the results. If your
not take ProEFA, maybe buy some efalex and try that.
efalex, a sock would probably be a treat!
Again, some EFAs are liked by some children-hated by others.
With ProEFA - many kids from the CHERAB group will just eat it
from a spoon, or chew the capsule since borage oil is naturally
can say that ProEFA does not smell like some of the other EFAs
used. After a year and a half of Tanner hiding behind the
it was time to take other fish oils, this was amazing even without
all the great breakthroughs he's had!
The improvements when on the right supplement and the regressions
the wrong one are pretty quick-within weeks in most cases-so again
you can see for yourself-like most of us did already!
higher EPA? bit of GLA?, and what about carnosine?
It's hard to answer all the recent questions on one email. I can
tell you that there are some questions that came up that can not
be answered by anyone for sure (most of them!) -and the
will tell you that. Karen gave some great advice to answer our
questions about the EFAs, in a nutshell online search for answers
http://www.google.com which is a great search engine -or go direct
PubMed or other sites like that to do searches. Keep in mind it's
just like anything -our children's doctors need to know so many
things that they may not focus on any one and may (probably) not
studied EFAs in medical school. In order for your child's
pediatrician, neurologist, teacher, SLP etc. to take EFAs
don't depend on the anecdotal emails you read here alone -bring
information from more credible sources -such as research funded by
the NIH like http://www.momtahan.com/mmartinez/
I tell almost every parent I speak to that renting Lorenzo's Oil
good thing to inspire you to the situation I believe we are in
the EFAs. It's frustrating to realize that there would probably be
more awareness campaigns and more money for research if we found
same anecdotal results from feeding our children the McDonald's
O' Fish sandwich than from plain fish oil alone.
As I've said in the past - I personally can't wait till they
out how to put all the Omega 3/6 that's helping so many children
speak into food. For more than one reason. Seeing how great it's
worked for so many "late talking" or apraxic children,
and us, the
parents, I can't wait till it's in stuff like ice cream and all so
that I can stop hearing so many saying their child's doctor
about fish oil like it's some kind of drug. It's a food
just can't wait till it's a food. Then it will be silly to say
Smith is it OK to give Molly eggs from Eggland's Best?" Or
loves fish oil Ice Cream? Should I switch him to a brand without
oil anyway?" I know right now at least two companies that are
working on developing to launch an odorless and tasteless Omega
powder to add to foods -Roche and Ocean Essentials. And a very
article from October 2001 (so we may be seeing more and more of
these fishy foods going ahead in the next four years) is here
"The U.S. Department of Agriculture (USDA) is providing
almost a $1
million to UMass over four years for this project, and nearly as
over the same period divided among the University of Connecticut,
Pennsylvania State University, and Harvard University Medical
I appreciate that there is lots of questions about all these
we are talking about -DHA, EPA, GLA and now carnosine. When we
became parents it's not like we expected to have to study
and brain chemistry -or become neuro scientists or anything. As
Donna pointed out -many medical professionals and academics will
laugh or scoff at the research done up till now. Yes attacks will
come to most who believe in something silly like fish oil therapy
but let them laugh, our children are talking because of it. We as
the parents and professionals exploring these new therapeutic
approaches are pioneers.
I know that there are some well known in the motor speech
area PhD's like Dr. Crary who is going back to school to do more
research and who has a great interest in the EFA and carnosine
The more research done the better for all the children. In the
meantime- I don't know whether all the studies have been good or
I just know what we are seeing in just about every child in one to
three weeks, and I don't believe it's fair not to share that
information and give parents the right to make a choice now vs 5
years from now. I for one wish I knew sooner.
When it comes to supplements or any untraditional therapy
my advice is to start one thing at a time and keep it simple (KIS)
you really know what is working -and what's not. There are various
supplements or diets that are talked about here do work amazingly
well for some, and some have a better success rate than others. In
general -you may want to consider trying EFAs first since that
anecdotally works for almost all within days to three weeks in
general. If you have your child on ProEFA, Efalex, or Eye Q or
other Omega 3/6 formula with no other supplements other than a
(regular diet and no blood analysis) wait a few weeks to see if
are any positive changes in speech, motor planning, focus, and
behavior. I would then recommend looking into the carnosine -talk
your child's doctor about it.
I would again not recommend starting ProEFA with extra EPA and
carnosine all at once or how will you know which one your child is
responding to? I always suggest starting with just one ProEFA
a few months till there is a plateau to either introduce the
carnosine, or to go up to one and a half or two ProEFA, but just
or the other. Once you are up to two ProEFA a day -instead of
to three ProEFA -I recommend adding the additional EPA. Just do it
all gradual -this may take 6 months to a year to do all of the
above. Why? So again you can see what your child is responding to
the most. Is it the Omega 3/6? Is it from the carnosine? Is it the
higher EPA Omega 3/6 formulas? (Omega 3 formula's alone including
high EPA formulas are not anecdotally successful for some reason)
What I've seen with each myself? Here is an archived answer:
For the most part -Tanner's had amazing surges on first Efalex and
then ProEFA -still he didn't talk lots, and kept most of his
sentences shorter. Since the increase in EPA and carnosine to the
ProEFA, and the addition to traditional ST and OT of karate and
swimming lessons, and cranial sacral and therapeutic listening
therapy, I've seen more surges and changes. I posted that after I
increased the EPA to the ProEFA I noticed an immediate improvement
syntax within the week which stayed with him and is noticeable to
all -I was calling people on the phone to let him talk to them.
Tanner also was talking like a baby before this, and even though
were thrilled he was talking -he was mixing up past and present
leaving out the little words which is when I looked into it and
posted lots about SLI -or speech language impairment, and when I
asked Paula Tallal PhD, and Judy Flax PhD to also be advisors to
CHERAB (check the archives). When I added the carnosine recently I
noticed an increase in the length of speech -more imaginative
as you can also see from recent posts in the archives -and all
just "talking and talking" now. (we need a new
that combines all this- that doesn't exist yet) The cranial sacral
therapy and the therapeutic listening have both shown improvements
the smoothness in the speech -and the karate and swimming I
are beneficial for a number of reasons including confidence and
awareness of the body for motor planning reasons.
So just like for supplements -I believe observation is the best
advisor for you as a parent
And here is an archived answer about why I started using the
EPA with Tanner.
"...I actually had purchased the ProEPA to up the EPA for my
Dakota who has been diagnosed by every neuro doctor and teacher
preschool with ADHD and we are avoiding meds still because he is
excelling in school since we started the fish oils - we have been
trying various formula's of the EFAs to find the best for him to
his attention still which the fish oils still don't help as much -
however for some reason, he too does better with an Omega 3/6
formula which we didn't know until this year. Dakota was given all
the many bottles of fish oil that didn't work for Tanner when I
thought they were all the same -not realizing back then that most
were just DHA and EPA alone. This year I started to give Dakota
higher EPA Omega 3/6 mix based on the stuff I read at
http://www.equazen.com before I just found out that the research
ADHD was with Efalex -I thought it was with EyeQ and the higher
So I started giving Dakota a ProEFA/ProEPA mix -not Tanner.
Anyway, not knowing, my husband started to give the ProEFA and
ProEPA mix to Tanner as well when Glenn and the boys went to
Boston to visit my new niece for the weekend when I couldn't go
this past January. When they came home, Glenn was saying how
my relatives were all commenting on how well Tanner was talking,
and in just that one
weekend I too noticed he was talking a bit faster and more clear.
Once I found out that Glenn gave the mixture to both I kept it up,
shared it with Dr. Agin, and watched, and keep in mind that Tanner
was not in any private therapy at that time. What we saw was a
in about a week in speed, recall and great improvement on syntax
was no longer "talking like a baby" and mixing up past
and leaving out the little words. I was very quiet here about
I wanted to see if this was just unique to Tanner. So I told a few
other parents and the doctors about it, let them hear Tanner over
phone I was so proud of him, and I again shared this news with
to share with the ECHO Canadian group (can't wait to see you guys
and no it's not bean-o I'm bringing for you!!) and I waited to see
others also saw a surge -which it's OK now -you guys can start
posting what you saw.
I still think it's best to start with just the one ProEFA capsule
day. Increase to two only after the surge isn't that great
Than after you hit the second plateau again sometime after a few
months-that's when it's good to try upping the EPA a bit by
a bit in to the mix. If you do it gradual like this then you can
what is working best for your child..."
This is just my viewpoint and please feel free to share or
We are all in this together and have the same end goal for our
President CHERAB Foundation
Communication Help, Education, Research, Apraxia Base
"Help give our cherubs a smile and a voice"
Subject: Re: Dosing Question
Thanks so much for the info. I've been speaking with them too-and
I've had a chance to ask this question to a few scientists. I
that basically, the answer is really "I don't know" or
"I don't want
to say because I could be liable" when you dig a bit beneath
surface. The reason that Efalex recommends a higher dosage is
because that is what they found successful in clinical
until clinical research is done with each type of EFA formula (DHA,
EPA, GLA, etc.) there won't be a clear cut answer to our questions
for every EFA formula out there. Since Efalex did have research
by Dr. Stordy- I'll be posting another message soon from Dr.
about this. (co-author of The LCP Solution book with Malcolm
Dosing questions need to be answered because what we are seeing is
like a miracle for so many of the children, and their families-and
not just with apraxia. For example-I just received two private
emails from a parent from this list who has three sons with CP
one has other issues as well (one with apraxia) -and each child is
remarkably responding to EFAs -as well as her husband. Maybe she
will share here as well. I received private an email from Lori D
(NJ) a forwarded post sent out to the list for Hearing Impaired
about our study and how EFAs can help children who are deaf with
communication (If you go to the archives of speech diet there are
few posts there too about it) And then with the recent posts here
about the babies responding within a week-and posts like
Karen's or Pam's, etc. where in a few months the apraxic child
progressed from essentially nonverbal to sentences- way faster
any apraxia therapy alone could have brought an apraxic child in
amount of time -it just gives you chills to hear these things! And
at the same time it shows the huge range in ages-weights, etc.
It leaves all of us as parents in the void of knowing "what
best for each individual?" I'm not curious as to what they
recommend on the bottle-or even what the FDA recommends -I'm
that right now I'm curious about what is the best dosage-and it's
question that really doesn't have an answer. We don't know and
know until research is done to questions like: is there a maximum
amount you can give a day?, etc.
This is what we can know from the bottles: If you have a child who
is one years old or 7 years old or an adult you can give one (or
capsule(s) a day of ProEFA- Efalex says: "Taking this product
first time - Adults and Children over five: 4 capsules each
and evening with food or drink for the first 12 weeks. Children
five: 2 to 3 Efamol Efalex capsules each morning and evening with
food or drink for the first 12 weeks. These levels are based on
research studies which indicate it could take up to 12 weeks to
the body's stores. After that a reduced is sufficient to maintain
If you know the science and the math you can figure it out-so here
are the two for example that my son Tanner has responded to
per 2 capsules (at least times two-and up to times four for each
DHA (from fish oil-Omega 3) 120 mg.
GLA (primrose oil Omega 6) 24 mg.
per one capsule (as is or times two)
DHA (from fish oil-Omega 3) 99 mg.
EPA (from fish oil Omega 3) 148 mg.
GLA (from borage seed oil Omega 6) 40 mg.
The question still is however-how come a much lower dosage of
is working better for most of our apraxic children than the higher
dosage of Efalex. And...can we increase the dosage of ProEFA from
one or two a day? And what happens then? I want the factual
just like all of you, but we just don't have it yet!
As a group we are "trail blazing" as Pam said, and since
not all of
our children are pure apraxics-we are as a group finding out how
are helping in other conditions-some which are being discussed
privately right now! It's very exciting now -and I'm sure will be
taken for granted in the future as accepted knowledge.
Now keep in mind that some parents of young children way under 60
pounds are already using 2 capsules a day. I do get quite a few
private emails about dosage and we all see them here too- I
just wanted to send this out to let you guys know that no matter
professionally it's said-the bottom line is nobody really knows
what is best-which is why research needs to be done in this area
EFAs. In the meantime, look at the dosages on Efalex since
was done with Efalex -and compare - then use common sense and
parental instincts together with speaking with medical or other
professionals you trust!
I know some people aren't happy with that and are looking for a
exact answer. In that case-use one or two capsules of ProEFA a day
or four to eight capsules of Efalex a day-as it states on the
Talk to you soon!
President CHERAB Foundation
Communication Help, Education, Research, Apraxia Base
"Help give our cherubs a smile and a voice"